Wednesday, April 01, 2009
Sunday, November 30, 2008
Monday, October 27, 2008
Autism is a funny thing! It affects every child differently. That is one reason it is so hard to diagnose and find treatments that work. Since it is so hard for John-Isaac to communicate he tends to just quietly go and do whatever it is he is thinking about instead of trying to find the words to ask. He also seeks out sensory input such as watching something spinning, bright lights flashing, etc. Hence, we have MONKEY! Monkey has become our best friend when we are out in large crowds! It fits like a backpack and has a long tail that Mommy or Daddy can hold on to. This accomplishes 2 goals. John-Isaac can still walk around independently and look at whatever he wants to look at, but at the same time he cannot wander off and get lost. And what would happen if John-Isaac got lost? Well, for starters he could not tell anyone his personal information. Chances are he would just sit there and look at them blankly. Not a good thing! Monkey is also something of a security item for John-Isaac. He loves him. We have to keep him put up at home or he will wear him all the time! Why am I telling you all of this you might ask? Well, upon occasion we have had many stares and even a few comments about Monkey. The worst being at the zoo. I was sitting on a bench feeding Linley, while Brian had the boys up looking at the polar bears. Two girls with their kids came through and I hear, "Yeah, but he is like 8". I promptly called them down and explained that first he was not 8 he was 6 and that he was autistic. They apologized several times and then left with their tails between their legs. I guess the reason that I am sharing about Monkey is that things are not always what they seem. Next time you see a child kicking and screaming in a business or a child wearing a Monkey in a crowded place don't be so quick to judge! There may be something else going on!
Friday, September 12, 2008
We have started John-Isaac on chocolate soy milk and he has really taken to it. I have a friend who told me it will make all the difference in the world with him. I am anxious to see. If he does well with this we may try the gluten (wheat) free stuff too. I am going to take it slowly. I will keep everyone posted.
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Thursday, September 04, 2008
Saturday, August 30, 2008
Friday, August 08, 2008
John-Isaac's journey began on May 1, 2002 as we welcomed our second son into the world. At eight weeks of age our world was shaken with a diagnosis of a heart condition that would require surgery. With the help of our prayer warriors, an Awesome God, and some wonderful doctors the surgery was successful and once again we thought we were on our way to having health and happiness. If only the story ended there. Looking back, this is where the real journey began. A journey of facing the unknown head on. A journey of fear, faith, and above all hope, and fervent prayer. As John-Isaac neared his first birthday we began to notice that there were some things that did not seem quite right. He did not say "Mama" or "Dada", or any words at all. He did not make good eye contact. At first I thought he might be a little bit behind from having his heart surgery. Slowly, however, I came to terms with the fact that this was something more that just being a "little behind". But what were we dealing with?
Everyone seemed to have their opinions, but no one could give us any real answers. We started speech and developmental therapy immediately. We took him to every kind of doctor in town from a neurologist to a child psychologist. Still no answers. This went on until the age of four. At this point we just wanted to know what it was we were dealing with (even though we knew in our hearts) so we could "fix" it. We finally got an appointment with a developmental group in Little Rock. The diagnosis came.....Moderate to severe Autism Spectrum Disorder. This was not a shock to us. We had been pretty sure this was what we were dealing with for about two years. Now that we had a diagnosis, it was time to start the fight for our son. We are still fighting!
We have learned to celebrate the small things as they always lead to bigger accomplishments. John-Isaac did eventually say his first word. He was two years old, I said something to him that he didn't like, and he pointed his finger at me and said, "NO". I never knew the sound of my child telling me "no" could sound so sweet! He is 6 now and has a very good vocabulary though he doesn't talk like most children his age. We have made a lot of progress, but we still have a lot of progress to make.
We do continue to pray every day for God to give us the key that will "unlock" our son. His sweet spirit and zeal for life brightens our world. I know God has a very special plan for John-Isaac's life. How blessed am I that I get to see that plan unfold first hand? Yes, I did say blessed. I do not count his autism as a curse but rather a very special blessing from God Himself. For you see, God thought that I was a good enough mother to entrust me with raising one of His most precious lambs. I keep that thought very close to my heart as there are days when I cannot find much reasoning in the situation. God is God and I am not! And that is a good thing!
Through this blog I hope to chonicle John-Isaac's progress and hopfully give other people a better understanding of autism. Thank you all for your support!